Autism and Asperger's

How does autism affect people, and how can this impact on accessing education and services

 

What is Autism and Asperger syndrome?

Autism is a spectrum condition. All autistic people share certain difficulties, but being autistic will affect them in different ways. Some people with Asperger syndrome also have mental health issues or other conditions, meaning people need different levels and types of support.

People with Asperger syndrome are of average or above average intelligence. They don't have the learning disabilities that many autistic people have, but they may have specific learning difficulties. They have fewer problems with speech but may still have difficulties with understanding and processing language.

People with Asperger syndrome see, hear and feel the world differently to other people. If you have Asperger syndrome, you have it for life – it is not an illness or disease and cannot be ‘cured’. Often people feel that Asperger syndrome is a fundamental aspect of their identity.

With the right sort of support, all can be helped to live a more fulfilling life of their own choosing.

 

How common is Asperger syndrome?

Autism, including Asperger syndrome, is much more common than most people think. There are around 700,000 autistic people in the UK – that's more than 1 in 100. People with Asperger syndrome come from all nationalities and cultural, religious and social backgrounds, although it appears to affect more men than women. This is now thought to be due to girls autism not being picked up on due to "masking" of symptoms.

 

How do people with Asperger syndrome see the world?

Some people with Asperger syndrome say the world feels overwhelming and this can cause them considerable anxiety.

In particular, understanding and relating to other people, and taking part in everyday family, school, work and social life, can be harder. Other people appear to know, intuitively, how to communicate and interact with each other, yet can also struggle to build rapport with people with Asperger syndrome. People with Asperger syndrome may wonder why they are 'different' and feel their social differences mean people don’t understand them.

Autistic people, including those with Asperger syndrome, often do not 'look' disabled. Some parents of autistic children say that other people simply think their child is naughty, while adults find that they are misunderstood.

 

Diagnosis

Because Asperger syndrome varies widely from person to person, making a diagnosis can be difficult. It is often diagnosed later in children than autism and sometimes difficulties may not be recognised and diagnosed until adulthood.

 

The benefits of a diagnosis

Some people see a formal diagnosis as an unhelpful label, but for many, getting a timely and thorough assessment and diagnosis may be helpful because:

  • it helps people with Asperger syndrome (and their families, partners, employers, colleagues, teachers and friends) to understand why they may experience certain difficulties and what they can do about them
  • it allows people to access services and support.

 

How Asperger syndrome is diagnosed

The characteristics of Asperger syndrome vary from one person to another, but in order for a diagnosis to be made, a person will usually be assessed as having had persistent difficulties with social communication and social interaction and restricted and repetitive patterns of behaviours, activities or interests since early childhood, to the extent that these “limit and impair everyday functioning”.

 

Persistent difficulties with social communication and social interaction

SOCIAL COMMUNICATION

Autistic people, including those with Asperger syndrome, have difficulties with interpreting both verbal and non-verbal language like gestures or tone of voice. Many have a very literal understanding of language, and think people always mean exactly what they say. They may find it difficult to use or understand:

  • facial expressions
  • tone of voice
  • jokes and sarcasm
  • vagueness
  • abstract concepts

People with Asperger syndrome usually have good language skills, but they may still find it hard to understand the expectations of others within conversations, perhaps repeating what the other person has just said (this is called echolalia) or talking at length about their own interests.

It often helps to speak in a clear, consistent way and to give people time to process what has been said to them.

 

SOCIAL INTERACTION

People with Asperger syndrome often have difficulty 'reading' other people - recognising or understanding others’ feelings and intentions - and expressing their own emotions. This can make it very hard for them to navigate the social world. They may:

  • appear to be insensitive
  • seek out time alone when overloaded by other people
  • not seek comfort from other people
  • appear to behave ‘strangely’ or in a way thought to be socially inappropriate.

They may find it hard to form friendships. Some may want to interact with other people and make friends, but may be unsure how to go about it.

 

Restricted and repetitive patterns of behaviours, activities or interests

REPETITIVE BEHAVIOUR AND ROUTINES

The world can seem a very unpredictable and confusing place to people with Asperger syndrome, who often prefer to have a daily routine so that they know what is going to happen every day. They may want to always travel the same way to and from school or work, or eat exactly the same food for breakfast.

The use of rules can also be important. It may be difficult for someone to take a different approach to something once they have been taught the 'right' way to do it. They may not be comfortable with the idea of change, but may be able to cope better if they can prepare for changes in advance.

 

HIGHLY-FOCUSED INTERESTS

Many people with Asperger syndrome have intense and highly-focused interests, often from a young age. These can change over time or be lifelong, and can include interests such as arts and music, trains and engineering, palaeontology and gemology, a vast range of collections, high fashion, physics or computing and some a little more unusual.

With the right support these interests can lead into studying, paid work, volunteering, or other meaningful occupation. People with Asperger syndrome often report that the pursuit of such interests is fundamental to their well-being and happiness.

 

SENSORY SENSITIVITY

Many People with Asperger syndrome also experience over- or under-sensitivity to sounds, touch, tastes, smells, light, colours, temperatures or pain, movement and understanding their self in space. For example, they may find certain background sounds, which other people ignore or block out, unbearably loud or distracting. This can cause anxiety or even physical pain. Or they may be fascinated by lights or spinning objects.

 

Because of recent and upcoming changes to the main diagnostic manuals, 'autism spectrum disorder' (ASD) is now likely to become the most commonly given diagnostic term. Asperger syndrome remains a useful profile for many diagnosticians and professionals.

[Information taken from the National Autistic Society]

Contact us on 0114 438 2849

 

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page last updated: 30/09/2018

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